Dyslexia Advocacy Update |Nothing About Us Without Us (Latin: Nihil de nobis, sine nobis) is a phrase that may date back to Poland’s 1505 constitution, but it was embraced by disability activists and needs to be embraced by the dyslexia movement today.
Thanks to Dyslexic Advantage Board member Thomas G. West who met with Representative Lamar Smith (co-chairman of the Bipartisan Dyslexia Caucus) as the READ Act (Research Excellence and Advancements for Dyslexia) was introduced in the House Committee on Science, Space, and Technology. We’re appreciative of NCLD for inviting us and other organizations to co-host Rep. Smith.
H.R. 3033 (hashtag #readact) is definitely much needed and supported by Dyslexic Advantage, and a discussion of the need for “balancing strengths” was very welcome.
But it is clear that more progress is needed by legislators and advocates. Back to Nothing About Us Without Us – Why was it that testimony was invited from dyslexia “experts” from universities but not from members of the adult dyslexics themselves or Dyslexic Advantage, the largest non-profit organization in the U.S. representing dyslexic families? Would legislators consider women’s legislation without hearing from women themselves? What about different racial groups?
A lot that remains to be done. If you would like to help us, be sure to sign up for our newsletter so you can hear about updates and consider also joining Dyslexic Advantage’s Community and Advocacy group. We also have a rally congress page HERE to contact your Congress people. Thank you!